once upon a time

eli

My name is eli (they/she) and I suffer from the chronic condition ME/CFS. I developed this condition at 23 years old, during a time in my life when I felt so incredibly immersed in life and wanted to do everything. Even though I did fun, meaningful things (like taking a course on crip theory), it all became too much. I knowingly ignored what my body had been telling me to do for months on end: slow down. I didn’t, until it forced me to, and I ended up in (what I now know was) the biggest PEM crash I’ve ever experienced. I’ve been sick for two years, and I’m almost fully bedridden.

once upon a time

once upon a time

there was a girl…

she loved to run

most every day

energetic like the sun

brighter than the brightest ray

she said she did it all for fun

such as games and play

and like the bullet of a gun

she’d be firing away

once when she had just begun

sprinting down along the way

she happened to become outrun

by a feeling there to stay

first time to be outdone

she had no clue of what to say

not a single word, not one

just her standing in dismay

then the feeling stopped and spun

on its knees to beg and pray

”what’s your hurry, little hun?

i must ask you, if i may

you know that i’ve already won

running won’t keep me at bay

i know what would help a ton

taking time to sit or lay”

she shrugged it off like would anyone

confident she’d be okay

running like she’d always done

not knowing of the price she’d pay

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