eli
My name is eli (they/she) and I suffer from the chronic condition ME/CFS. I developed this condition at 23 years old, during a time in my life when I felt so incredibly immersed in life and wanted to do everything. Even though I did fun, meaningful things (like taking a course on crip theory), it all became too much. I knowingly ignored what my body had been telling me to do for months on end: slow down. I didn’t, until it forced me to, and I ended up in (what I now know was) the biggest PEM crash I’ve ever experienced. I’ve been sick for two years, and I’m almost fully bedridden.
once upon a time
once upon a time
there was a girl…
she loved to run
most every day
energetic like the sun
brighter than the brightest ray
she said she did it all for fun
such as games and play
and like the bullet of a gun
she’d be firing away
once when she had just begun
sprinting down along the way
she happened to become outrun
by a feeling there to stay
first time to be outdone
she had no clue of what to say
not a single word, not one
just her standing in dismay
then the feeling stopped and spun
on its knees to beg and pray
”what’s your hurry, little hun?
i must ask you, if i may
you know that i’ve already won
running won’t keep me at bay
i know what would help a ton
taking time to sit or lay”
she shrugged it off like would anyone
confident she’d be okay
running like she’d always done
not knowing of the price she’d pay

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